Disconnect in Assessments of Autosomal Dominant Polycystic Kidney Disease Burden Between Patients and Physicians: A Survey Study.

Myrlene Sanon AigbogunDorothee OberdhanMichael J DoaneJillian RooneyBrian C InyartChristina S PaoAlexis H Denny

Published in: International journal of nephrology and renovascular disease (2021)

The results of this survey study demonstrate a disconnect between patients' experiences and physicians' awareness of the burden of ADPKD and highlight the need for more patient/physician discussion of symptoms and disease management.

Keyphrases

primary care
end stage renal disease
newly diagnosed
polycystic kidney disease
prognostic factors
emergency department
mental health
patient reported outcomes
risk factors
cross sectional
depressive symptoms
sleep quality