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Is the search for cerebral palsy 'cures' a reasonable and appropriate goal in the 2020s?

Ingrid HonanMegan Finch-EdmondsonChristine ImmsIona NovakAmy HoganShannon CloughBruce BonyhadySarah McintyreCatherine ElliottShirley WongMichael BinkNadia Badawi
Published in: Developmental medicine and child neurology (2021)
In the field of disability research and advocacy, the notion of 'cures' is contentious. Cerebral palsy (CP) is no exception. In this narrative review, we combine perspectives gained during community consultation undertaken for the Australian and New Zealand Cerebral Palsy Strategy, 2020 with those published in the scientific and grey literature to understand whether 'cures for CP' is a reasonable and appropriate goal. We frame these perspectives through the lens of several ethical principles central to the discussion. These include maintaining hope while also being realistic, sensitivity to sharply different viewpoints amongst people with disability and their families, and responding to community priorities, societal attitudes, and identity. Through this exploration of the literature and perspectives, we arrived at a definition of 'cures for CP' that is pluralized and focuses on functional improvement and/or symptom reduction whilst still acknowledging the potential for neural repair/regeneration strategies.
Keyphrases
  • cerebral palsy
  • mental health
  • systematic review
  • multiple sclerosis
  • stem cells
  • palliative care
  • randomized controlled trial
  • climate change
  • patient reported