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A Qualitative Study of the Spiritual Aspects of Parenting a Child with Down Syndrome.

Elysângela Dittz DuartePatrícia Pinto BragaBárbara R GuimarãesJuliana Barony da SilvaSílvia Caldeira
Published in: Healthcare (Basel, Switzerland) (2022)
Parenting a child with Down syndrome can sometimes present certain difficulties and, thus, spirituality may function as a dimension related to finding meaning in life and as a coping resource. Spirituality is a critical dimension of nursing care, but scarce knowledge is available to specifically inform family nursing practice. The aim of this study was to explore the spiritual aspects of parenting a child with Down syndrome, as a qualitative secondary analysis. This is an observational qualitative study, based on in-depth interviews from 42 participants. Data analysis found seven categories that concern meaning and purpose in life: hope, family strength, spiritual practices, personal beliefs, and love, and trust in healthcare providers. Spirituality is a resource in parents' lives who are living in this situation. Nurses should consider this dimension in supporting families and in improving management of this life and health condition.
Keyphrases
  • healthcare
  • mental health
  • advanced cancer
  • data analysis
  • palliative care
  • primary care
  • health information
  • public health
  • quality improvement
  • optical coherence tomography
  • health insurance