Login / Signup

Development of an online suicide prevention program involving people with lived experience: ideas and challenges.

Mareike DreierJohanna BaumgardtThomas BockMartin Härternull nullSarah Liebherz
Published in: Research involvement and engagement (2021)
Through contributions to discussions and text reviews, the lived experience team shaped decisions in the program development process. While involving persons with lived experiences of suicide, it is important to consider that suicidality is 1. emotionally challenging, 2. a stigmatized issue, and 3. that the aspect of safety must be a priority. A distinction must be made between the duty of care based on actual risk and inappropriate overprotection. Hereby, transparency, autonomy, and a clear structure appeared to be helpful. For further research, we recommend a structured formative review process of the development of the program. Additionally, we recommend discussing the purpose and the specific design of the evaluation with a lived experience team in advance. Trial registration German Clinical Trial RegisterDRKS00015071 on August 6, 2018.
Keyphrases
  • quality improvement
  • clinical trial
  • palliative care
  • healthcare
  • study protocol
  • phase ii
  • systematic review
  • randomized controlled trial