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Controlled evaluation of a transition clinic for Dutch young people with cystic fibrosis.

Mariëlle A C PeetersJane N T SattoeAnneLoes van StaaSimone E VersteegInge HeeresNiels W RutjesHettie M Janssens
Published in: Pediatric pulmonology (2019)
The TC had several perceived benefits and showed positive trends in transfer experiences and satisfaction, but no differences in health-related outcomes. Structured preparation of young people, joint consultations with pediatric and adult care professionals, and better coordination were perceived as facilitating elements. Further improvement demands solutions for organizational and financial barriers, and better embedding of self-management interventions in CF care.
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