Development of a questionnaire to assess the patient perspective regarding challenges in psoriatic arthritis treatment-a mixed-methods study.
André Lucas RibeiroJúlia Andressa TessariCharles Lubianca KohemPenélope Esther PalominosRafael Mendonça da Silva ChakrPublished in: Advances in rheumatology (London, England) (2024)
The questionnaire was feasible and reliable, with its results underscoring patient-centric challenges in PsA management, particularly concerning diagnostic delays and medication access, as well as daily life disruptions and misinformation. These findings emphasize the urgency for healthcare reforms aimed at improving diagnosis efficiency, patient education, and streamlined medication access, emphasizing the need for tailored initiatives to improve the healthcare experience for PsA patients.
Keyphrases
- healthcare
- prostate cancer
- case report
- end stage renal disease
- ejection fraction
- chronic kidney disease
- quality improvement
- cross sectional
- newly diagnosed
- patient reported
- physical activity
- social media
- peritoneal dialysis
- prognostic factors
- adverse drug
- smoking cessation
- psychometric properties
- health information
- affordable care act