Patient and carer involvement in the formulation of research questions: findings from the Italian guideline on palliative care in adults with glioma.
Simone VeroneseElisabetta BertocchiBarbara LissoniRoberta RudàAntonio SilvaniSimonetti GiorgiaAnna PisanelloSonia IeraciAndrea SalmaggiRossella MerliMarina VerzaLudovica de PanfilisAlessandra SolariAndrea PacePublished in: Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology (2023)
Interviews and FGMs were well informative and emotionally challenging. Both parties confirmed the importance of the pre-specified topics, and carers suggested one additional topic: education/support to caregivers. Our findings strengthen the importance of a comprehensive care approach and of addressing the needs of both patients and their family carers.