Development of an item pool for a patient reported outcome measure of resilience for people living with dementia.
Jennifer Rhiannon RobertsCatherine Anne MacLeodZoë HoareMary Pat SullivanEmilie V BrotherhoodJoshua StottGill WindlePublished in: Journal of patient-reported outcomes (2023)
Established methods for measurement development included the expertise of people with dementia and led to the generation of a set of items for a new resilience measure that were understandable and acceptable to this target population. This 37-item pool reflects the conceptual understanding of resilience in dementia as being derived across individual, community and societal level resources.