Transition of care of patients with eosinophilic gastrointestinal diseases: Challenges and opportunities.
Girish HiremathAdrian Chapa-RodriguezDavid A KatzkaJonathan M SpergelBenjamin GoldAlbert J BredenoordEvan S DellonJeannie HuangSandeep K GuptaPublished in: Translational science of rare diseases (2022)
Eosinophilic gastrointestinal disorders (EGID) are a group of allergen-mediated conditions which are characterized by eosinophilic inflammation affecting one or more parts of the gastrointestinal tract. A disproportionately higher number of EGID patients are diagnosed in the pediatric age group. Given the chronic course of EGIDs and lack of curative therapies at this time, majority of the pediatric EGID patients may require continued care well into their adulthood. However, to date, scant data are available regarding the health care transition (HCT), the transition of care (TC), and the effectiveness of transfer of care EGID patients from pediatric-oriented to adult-oriented providers. Herein, we review the lessons learnt from transfer of care of children with other chronic gastrointestinal and allergic conditions, analyze the current knowledge, potential barriers, the role of various stakeholders in successful transfer of care of EGID patients, propose a conceptual framework for HCT and TC of EGID patients, and identify outcome measures to ensure the quality of progression of care.
Keyphrases
- healthcare
- end stage renal disease
- palliative care
- newly diagnosed
- chronic kidney disease
- prognostic factors
- quality improvement
- peritoneal dialysis
- randomized controlled trial
- machine learning
- oxidative stress
- depressive symptoms
- signaling pathway
- social media
- rectal cancer
- cell death
- electronic health record
- cell proliferation
- climate change