Development of the coreHEM mental health patient-reported outcome measure - A novel mental health outlook measure for people with haemophilia.
Elizabeth ClearfieldHsing-Yuan ChangEllen M JanssenTabassum MajidDonna A MessnerDonna CoffinMohit JainPaul E MonahanLeonard A ValentinoMichelle WitkopMark W SkinnerPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2024)
The instrument is content-validated and can be used as an exploratory outcome. MHO scores can be measured and compared to give more insight into patient quality of life.