How do people with Motor Neurone Disease experience dysphagia? A qualitative investigation of personal experiences.

This study provides a unique contribution in advancing our understanding of dysphagia in Motor Neurone Disease. Professionals need to view dysphagia within the disease as a whole, and recognize personal values, preferences and coping strategies of people with Motor Neurone Disease, in the management of dysphagia.IMPLICATIONS FOR REHABILITATIONRecognizing the experiences of dysphagia in Motor Neurone Disease contributes to provision of patient-centred care.Professional services for dysphagia should consider the overall experience of living with Motor Neurone Disease rather than focusing on dysphagia alone.Some people with Motor Neurone Disease wish to manage dysphagia alone. Research and intervention should focus on how to support people with Motor Neurone Disease in doing so.Although dysphagia causes multiple consequences in Motor Neurone Disease it may not be perceived as a constant issue by people with Motor Neurone Disease. Communication impairment may be a bigger concern than dysphagia for some people with Motor Neurone Disease.