Feasibility and ethics of using data from the Scottish newborn blood spot archive for research.

Sarah Cunningham-BurleyDaniel L McCartney Archie I Campbell Robin FlaigClare E L OrangeCarol PorteousMhairi AitkenCiaran MulhollandSara DavidsonSelena M McCaffertyLee MurphyNicola WrobelSarah McCaffertyKaren WallaceDavid StClairShona M Kerr Caroline Hayward Andrew M McIntoshCathie SudlowRiccardo E MarioniJill PellZosia MiedzybrodzkaDavid J Porteous

Published in: Communications medicine (2022)

Through the Citizens' Jury, we have begun to identify under what conditions, if any, should researchers in Scotland be granted access to the archive. Through the feasibility study, we have demonstrated the potential value of research access for health data science and predictive medicine.

Keyphrases

public health
big data
electronic health record
healthcare
mental health
human health
machine learning
data analysis
risk assessment
global health
climate change
health promotion