Using Critical Race Theory to Understand Trial Participation Among Black Individuals With Systemic Lupus Erythematosus: A Qualitative Study of Patients and Caregivers.
Rodlescia S SneedMaryann MasonJessica N WilliamsCorine SinnetteKreager TaberKaren Mancera-CuevasGina CurryPatricia CanessaRosalind Ramsey-GoldmanCandace H FeldmanPublished in: Arthritis care & research (2021)
Actions to improve clinical trial participation among Black individuals should focus on reframing how trial information is presented and disseminated and on reevaluating barriers that may restrict trial participation. Additionally, researchers must acknowledge and respond to the presence of racial bias in health care. Community-academic partnerships may help build trust and reduce fears of mistreatment among Black individuals with SLE.
Keyphrases
- clinical trial
- systemic lupus erythematosus
- phase iii
- phase ii
- study protocol
- healthcare
- physical activity
- end stage renal disease
- open label
- disease activity
- ejection fraction
- chronic kidney disease
- randomized controlled trial
- health information
- mental health
- prognostic factors
- newly diagnosed
- peritoneal dialysis
- double blind
- patient reported outcomes
- social media