Patient-reported outcomes in the Translational Breast Cancer Research Consortium.
Deborah J BowenEileen H ShinnSophie GregrowskiGretchen KimmickLaura S DominiciElizabeth S FrankKaren Lisa SmithGabrielle Betty RocqueKathryn J RuddyTeri PollastroMichelle MeliskoTarah J BallingerOluwadamilola M FayanjuAntonio C WolffPublished in: Cancer (2019)
Members of the Translational Breast Cancer Research Consortium conducted an expert-driven literature review to identify a list of domains and to evaluate potential measures of these domains for inclusion in a list of preferred measures. Measures were included if they were easily available, free of charge, and had acceptable psychometrics based on published peer-reviewed analyses. A total of 22 domains and 52 measures were identified during the selection process. Taken together, these measures form a reliable and validated list of measurement tools that are easily available and used in multiple cancer trials to assess patient-reported outcomes in relevant patients.