Development of respiratory care guidelines for Duchenne muscular dystrophy in the UK: key recommendations for clinical practice.
Anne-Marie ChildsCatherine TurnerRonan AstinStephen BianchiJohn BourkeVicki CunninghamLisa EdelChristopher EdwardsPhillippa FarrantJane HeraghtyMeredith JamesCharlotte MasseyBen MesserJassi Michel SodhiPatrick Brian MurphyMarianela SchiavaAjit ThomasFederica TruccoMichela GuglieriPublished in: Thorax (2023)
These guidelines provide practical, reasoned recommendations for all those managing day-to-day and acute respiratory care in children and adults with DMD. The hope is that this will support patients and healthcare professionals in accessing high standards of care across the UK.
Keyphrases
- clinical practice
- duchenne muscular dystrophy
- healthcare
- palliative care
- quality improvement
- end stage renal disease
- chronic kidney disease
- pain management
- ejection fraction
- newly diagnosed
- affordable care act
- cross sectional
- young adults
- prognostic factors
- peritoneal dialysis
- muscular dystrophy
- respiratory failure
- acute respiratory distress syndrome