What matters in clinical trial decision-making: a systematic review of interviews exploring cancer patients' experiences.
Trine A GregersenRegner BirkelundMaiken WolderslundMette Løwe Netsey-AfedoKarina Dahl SteffensenJette AmmentorpPublished in: Scandinavian journal of caring sciences (2019)
This review points to existential issues as important contributors in making decisions about treatment. It can be beneficial if health care professionals address the role of existential matters in patients' decision-making in terms of clinical trial participation and involve the relatives more directly to increase individualised decisions. Future research should include the health care professionals' experiences when going in depth with decision-making, with a focus on the existential matters and uncertainties of the health care professionals.
Keyphrases
- healthcare
- clinical trial
- decision making
- end stage renal disease
- chronic kidney disease
- mental health
- ejection fraction
- newly diagnosed
- open label
- study protocol
- peritoneal dialysis
- phase ii
- prognostic factors
- physical activity
- randomized controlled trial
- double blind
- optical coherence tomography
- patient reported outcomes
- phase iii
- combination therapy