Experiences of Diagnosis, Symptoms, and Use of Reliever Inhalers in Patients With Asthma and Concurrent Inducible Laryngeal Obstruction or Breathing Pattern Disorder: Qualitative Analysis of a UK Asthma Online Community.
Catrin ByrnePaul E PfefferAnna De SimoniPublished in: Journal of medical Internet research (2023)
Undiagnosed ILO and BPD symptoms and lack of effects of asthma treatment were topics of discussion in an asthma online community, caused distress and frustration in participants, and affected their relationship with health care professionals, showing that patients experiencing BPD and ILO have unmet needs. Clinicians' education on BPD and ILO diagnosis and management, as well as increased access to appropriate management options, such as respiratory physiotherapy and speech and language therapy, are warranted particularly in primary care. Qualitative evidence that engagement with the online community resulted in patients taking action going back to their clinicians and reaching a diagnosis of ILO and BPD prompts future research on online peer support from an established online health community as a self-management resource for patients.
Keyphrases
- healthcare
- end stage renal disease
- mental health
- primary care
- social media
- chronic kidney disease
- ejection fraction
- health information
- chronic obstructive pulmonary disease
- newly diagnosed
- peritoneal dialysis
- palliative care
- squamous cell carcinoma
- public health
- patient reported outcomes
- depressive symptoms
- radiation therapy
- physical activity
- bone marrow
- allergic rhinitis
- mesenchymal stem cells
- cross sectional
- cystic fibrosis
- locally advanced
- respiratory tract