Baseline characteristics of children in the International PANS Registry (IPR) Epidemiology Study.
Erin E MastersonJessica M GavinPublished in: BMJ open (2024)
Future plans include increasing sample size, collecting longitudinal survey data, recruiting appropriate study controls and expanding the scope of the database, prioritising medical record data integration and creating a linked biorepository. Secondary data analyses will prioritise identifying subgroups by phenotypic traits, maternal health and disease characteristics.