Individualised advance care planning in children with life-limiting conditions.

Erik A H LoeffenWim J E TissingMeggi A Schuiling-OttenChris C de KruiffLeontien C M KremerA A Eduard Verhagennull null

Published in: Archives of disease in childhood (2017)

We propose a set of essential components of a comprehensive IPPCP for paediatric palliative care with extra attention for advance care planning and anticipatory action. Patients' and parents' preferences and desires are included next to the recommendations of the evidence-based guideline 'Palliative care for children'.

Keyphrases

advance care planning
palliative care
advanced cancer
young adults
end stage renal disease
newly diagnosed
ejection fraction
emergency department
intensive care unit
prognostic factors
working memory
patient reported outcomes