Responsibility, culpability, and parental views on genomic testing for seriously ill children.
Janet MalekStacey PereiraJill O RobinsonAmanda M GutierrezMelody J SlashinskiD Williams ParsonsSharon E PlonAmy L McGuirePublished in: Genetics in medicine : official journal of the American College of Medical Genetics (2019)
These results reveal a layer of meaning that parents associate with GS that may inform clinicians' approach to care.