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Palliative care for people with substance use disorder and multiple problems: a qualitative study on experiences of patients and proxies.

Anne EbenauBoukje DijkstraChantal Ter HuurneJeroen HasselaarKris VissersMarieke Groot
Published in: BMC palliative care (2019)
This study shows that talking about and anticipating on PC with this patient-group appears hard due to patients' closed and avoiding communication. Furthermore, some of patients' EOL-preferences and needs, and coping-strategies, seem to differ from the more generally-accepted ideas and practices. Therefore, educating HCPs in communicating with this patient-group, is needed.
Keyphrases
  • end stage renal disease
  • ejection fraction
  • chronic kidney disease
  • palliative care
  • newly diagnosed
  • prognostic factors
  • primary care
  • healthcare
  • peritoneal dialysis
  • case report
  • social support
  • patient reported