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The American Association for Thoracic Surgery (AATS) 2023 Expert Consensus Document: Recommendation for the care of children with trisomy 13 or trisomy 18 and a congenital heart defect.

James D St LouisAarti BhatJohn C CareyAngela E LinPaul C MannLaura Miller SmithBenjamin S WilfondKatherine A KosivRobert A SorabellaBahaaldin Alsoufi
Published in: The Journal of thoracic and cardiovascular surgery (2024)
This is the first set of recommendations collated by an expert multidisciplinary group to address specific issues around indications for surgical intervention in children with trisomy 13 or trisomy 18 with congenital heart defect. Based on our analysis of recent data, we recommend that decisions should not be based solely on the presence of trisomy but, instead, should be made on a case-by-case basis, considering both the severity of the baby's heart disease as well as the presence of other anomalies. These recommendations offer a framework to assist parents and clinicians in surgical decision making for children who have trisomy 13 or trisomy 18 with congenital heart defect.
Keyphrases
  • young adults
  • palliative care
  • decision making
  • healthcare
  • randomized controlled trial
  • thoracic surgery
  • pulmonary hypertension
  • data analysis