Care demands experienced by family caregivers of children with Primary Immunodeficiency.
Milka Gabrielle de Lira Nóbrega WestMaria Gorete Lucena de VasconcelosMaria Wanderleya de Lavor Coriolano MarinusEdnaldo Cavalcante de AraújoPublished in: Revista brasileira de enfermagem (2020)
family caregivers experience several feelings such as anguish and low self-esteem due to the fear of losing their child and the routine of illnesses and hospitalizations, in addition to needs that are often not reached due to incompatibility with the family budget. The Social Support Network is strengthened for most caregivers, playing an essential role as a coping strategy for caregivers.