Facilitating patient-centered care: the development of illustrated multidimensional patient-reported outcome measures for children/adolescents with juvenile idiopathic arthritis.
Yasser El MiedanyM El GaafaryH LotfyN El AroussyD MekkawyS I NasefG ElderinyY FaragM HassanPublished in: Clinical rheumatology (2019)
Integrating PROMs into standard clinical practice is feasible and applicable. The illustrated questionnaire was valid and reliable. It provides an informative, quantitative measure for the disease activity score set data, and in the meantime, facilitates the assessment of the children's adherence to therapy, comorbidities, and motivation on an individual basis.
Keyphrases
- juvenile idiopathic arthritis
- disease activity
- patient reported
- young adults
- rheumatoid arthritis
- systemic lupus erythematosus
- rheumatoid arthritis patients
- clinical practice
- ankylosing spondylitis
- patient reported outcomes
- healthcare
- palliative care
- quality improvement
- electronic health record
- psychometric properties
- machine learning
- stem cells
- metabolic syndrome
- insulin resistance
- adipose tissue
- mesenchymal stem cells
- affordable care act
- cell therapy
- mass spectrometry
- deep learning
- data analysis