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Development of an advance directive 'communication tool' relevant for patients with advanced cancer in six European countries: Experiences from the ACTION trial.

Caroline Moeller ArnfeldtMogens GroenvoldAnna Thit JohnsenBranka ČervLuc DeliensLesley DunleavyAgnes van der HeideMarijke C KarsUrška LunderGuido MiccinesiKristian PollockJudith A C RietjensJane Seymournull null
Published in: PloS one (2022)
This article shows the complex task of developing an advance directive suitable for cancer patients from six European countries; a process which required the resolution of several cross cultural differences in law, ethics, philosophy and practice. Our hope is that this paper can contribute to a deeper conceptual understanding of advance directives, their role in supporting decision making among patients approaching the end of life and be an inspiration to others wishing to develop a disease-specific advance directive or a standardised multinational advance directive.
Keyphrases
  • advanced cancer
  • palliative care
  • decision making
  • healthcare
  • primary care
  • public health
  • mental health
  • deep learning
  • open label