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Inflammatory bowel disease patient-reported quality assessment should drive service improvement: a national survey of UK IBD units and patients.

A Barney HawthorneJackie GlatterJonathan BlackwellRachel AinleyIan ArnottKevin J BarrettGraham BellMatthew James BrookesMelissa FletcherRafeeq MuhammedAlan Michael NevillJonathan P SegalChristian Philipp SelingerAnja St Clair JonesLisa Youngenull nullChristopher Andrew Lamb
Published in: Alimentary pharmacology & therapeutics (2022)
This extensive patient and healthcare provider survey emphasises the importance of aspects of care less often measured by clinicians, such as communication, shared decision- making and provision of information. It demonstrates that IBD nurse specialists are crucial to meeting the needs of people living with IBD.
Keyphrases
  • healthcare
  • patient reported
  • palliative care
  • primary care
  • ulcerative colitis
  • end stage renal disease
  • ejection fraction
  • cross sectional
  • social media