Development of the Screening Tool for Everyday Mobility and Symptoms (STEMS) for skeletal dysplasia.
Penelope J IrelandRavi SavarirayanTash PocoviTracy TateMarie CoussensLouise ToftsCraig MunnsVerity PaceyPublished in: Orphanet journal of rare diseases (2021)
The Screening Tool for Everyday Mobility and Symptoms (STEMS) is a useful new tool to identify and record mobility aide use and associated self-reported symptoms across three environmental settings for adults and children with skeletal dysplasia. The STEMS may assist clinicians to monitor individuals for changes in functional mobility and symptoms over time, identify individuals who are functioning poorly compared to peers and need further assessment, and to measure effectiveness of treatment interventions in both clinical and research settings.