Patient and parent-reported outcomes in paediatric ventricular assist device support: a multi-center ACTION learning network feasibility and pilot experience.
Melissa K CousinoLindsay J MayLauren SmythMelissa McQueenKatherine ThompsonTiffany HunterCourtney VentrescoKatrina FieldsJenna MurrayDesiree S MachadoMuhammad ShezadFarhan ZafarDavid N RosenthalAngela LortsElizabeth D BlumePublished in: Cardiology in the young (2023)
This multi-center ACTION learning network-based PRO programme demonstrated initial success in this six-center pilot study experience and yields important next steps for larger-scale PRO collection, research, and clinical intervention.