Impact of disability-based discrimination in healthcare on parents of children with medical complexity.
Stefanie G AmesRebecca K DelaneyClaudia Delgado-CorcoranAmy J HoutrowJustin AlveyMelissa H WattNancy MurphyPublished in: Developmental medicine and child neurology (2024)
The experience of discrimination toward their child results in loss of trust and therapeutic relationship between provider and parent, causes increased burden to the family, and contributes to decreased parental well-being. These experiences are magnified in minoritized families and in families perceived to have a lower socioeconomic status based on insurance type.