Understanding perspectives on neural tube defect management: insights from Jordanian parents.
Oqba A H Al-KuranDunia Z JaberAhmad AhmadSadan AbdulfattahSara MansourReem AbushqeerNoor Al MuhaisenLena AlKuranMais AlKhaliliLama M M Al-MehaisenPublished in: The journal of maternal-fetal & neonatal medicine : the official journal of the European Association of Perinatal Medicine, the Federation of Asia and Oceania Perinatal Societies, the International Society of Perinatal Obstetricians (2024)
This study represents the first case-control investigational study in Jordan focusing on parental perspectives regarding TOP versus intrauterine repair of myelomeningocele following a diagnosis of an NTD-affected fetus. Based on our findings, we urge the implementation of a national and international surveillance program for NTDs, assessing the disease burden, facilitating resource allocation toward prevention strategies, and promoting early diagnosis initiatives either by using newly suggested diagnostic biomarkers or early Antenatal ultrasonography.