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Multi-centre national audit of juvenile localised scleroderma: describing current UK practice in disease assessment and management.

Hanna LythgoeBeverley AlmeidaJoshua BennettChandrika BhatAmarpal BilkhuMary BrennanSamundeeswari DeepakPamela DawsonDespina EleftheriouKathryn HarrisonDaniel HawleyEleanor HeafValentina LeoneEma LongSarah MaltbyFlora McErlaneNadia RafiqAthimalaipet V RamananPhil RileySatyapal RangarajGiulia VarnierNick WilkinsonClare E Pain
Published in: Pediatric rheumatology online journal (2018)
There is wide variation in assessment and screening of patients with JLS but a consistent approach to systemic treatment within UK paediatric rheumatology. Improved awareness of PRES recommendations is required to ensure standardised care. As recommendations are based on low level evidence and consensus opinion, further studies are needed to better define outcome measures and treatment regimens for JLS.
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