Login / Signup

Siblings' life aspirations in the context of Duchenne muscular dystrophy: a mixed-methods case-control study.

Carolyn Emily SchwartzElijah BiletchRichard B B StuartBruce D Rapkin
Published in: Journal of patient-reported outcomes (2022)
This is the first study to evaluate DMD siblings' aspirations in comparison to their peers. While there were many similarities between groups, the differences in aspirations between DMD siblings and their peers encompassed not just DMD, family/community, and intimacy, but also more work concerns. Directions for future quantitative and qualitative research are discussed.
Keyphrases
  • duchenne muscular dystrophy
  • intellectual disability
  • muscular dystrophy
  • healthcare
  • mental health
  • high resolution
  • systematic review
  • autism spectrum disorder