Carolyn Emily Schwartz (Carolyn E Schwartz)

Publication Activity (10 Years)

Years Active: 2019-2024
Publications (10 Years): 49

Top Topics

Duchenne Muscular Dystrophy

Respiratory Syndrome Coronavirus

Top Venues

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

Journal of patient-reported outcomes

Orphanet journal of rare diseases

Journal of personalized medicine

This page only lists publications with an associated author ORCID identifier.

Publications

Carolyn Emily Schwartz, Katrina Borowiec, Bruce D Rapkin, Joel A Finkelstein
Functional Status Correlates of Change and Stability in Appraisal after Spine Surgery: Earlier versus Later Effects. Journal of personalized medicine 14 (3) (2024)
Carolyn Emily Schwartz, Katrina Borowiec, Yuelin Li, Bruce D Rapkin
Individual differences in the long-term impact of the pandemic: moderators of COVID-related hardship, worry, and social support. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 33 (4) (2024)
Carolyn Emily Schwartz, Katrina Borowiec, Yuelin Li, Bruce D Rapkin
Correction to: Individual differences in the long-term impact of the pandemic: moderators of COVID-related hardship, worry, and social support. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2024)
Carolyn Emily Schwartz, Katrina Borowiec, Jinny Min, Jesse Fishman
Fatigue Item Response among Hemoglobin-Normalized Patients with Paroxysmal Nocturnal Hemoglobinuria: PEGASUS Trial Results at 16 and 48 Weeks. Journal of clinical medicine 13 (6) (2024)
Carolyn Emily Schwartz, Katrina Borowiec, Yuelin Li, Bruce D Rapkin
Individual differences in the long-term impact of the pandemic: moderators of COVID-related hardship, worry, and social support. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 33 (4) (2024)
Carolyn Emily Schwartz, Katrina Borowiec, Jinny Min, Jesse Fishman
Fatigue Item Response among Hemoglobin-Normalized Patients with Paroxysmal Nocturnal Hemoglobinuria: PEGASUS Trial Results at 16 and 48 Weeks. Journal of clinical medicine 13 (6) (2024)
Carolyn Emily Schwartz, Katrina Borowiec, Yuelin Li, Bruce D Rapkin
Individual differences in the long-term impact of the pandemic: moderators of COVID-related hardship, worry, and social support. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 33 (4) (2024)
Carolyn Emily Schwartz, Katrina Borowiec
Disabled from work and depressed: cognitive factors associated with exacerbated or attenuated depression over the COVID-19 pandemic. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2024)
Carolyn Emily Schwartz, Katrina Borowiec, Bruce D Rapkin, Joel A Finkelstein
Functional Status Correlates of Change and Stability in Appraisal after Spine Surgery: Earlier versus Later Effects. Journal of personalized medicine 14 (3) (2024)
Carolyn Emily Schwartz, Katrina Borowiec, Bruce D Rapkin
When better is the enemy of good: two cautionary tales of conceptual validity versus parsimony in clinical psychometric research. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2024)
Carolyn Emily Schwartz, Katrina Borowiec, Bruce D Rapkin
When better is the enemy of good: two cautionary tales of conceptual validity versus parsimony in clinical psychometric research. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 33 (6) (2024)
Carolyn Emily Schwartz, Katrina Borowiec, Yuelin Li, Bruce D Rapkin
Individual differences in the long-term impact of the pandemic: moderators of COVID-related hardship, worry, and social support. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2024)
Carolyn Emily Schwartz, Katrina Borowiec, Bruce D Rapkin
The faces of Long-COVID: interplay of symptom burden with socioeconomic, behavioral and healthcare factors. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2024)
Carolyn Emily Schwartz, Katrina Borowiec
Development and validation of the HDSIM™ assessment system: a measure of hemorrhoid disease symptom impact. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2024)
Carolyn Emily Schwartz, Katrina Borowiec
Development and validation of the HDSIM™ assessment system: a measure of hemorrhoid disease symptom impact. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 33 (6) (2024)
Carolyn Emily Schwartz, Skyler Jackson, James Valentine, Natalie Miller, Linda Lowes, Danielle Edwards, Christine McSherry, Dimitrios Savva, Alex Lowe, Jordan McSherry, Patti Engel
Toward patient-centered treatment goals for duchenne muscular dystrophy: insights from the "Your Voice" study. Orphanet journal of rare diseases 18 (1) (2023)
Carolyn Emily Schwartz, Skyler Jackson, James Valentine, Natalie Miller, Linda Lowes, Danielle Edwards, Christine McSherry, Dimitrios Savva, Alex Lowe, Jordan McSherry, Patti Engel
Toward patient-centered treatment goals for duchenne muscular dystrophy: insights from the "Your Voice" study. Orphanet journal of rare diseases 18 (1) (2023)
Carolyn Emily Schwartz, Skyler Jackson, James Valentine, Natalie Miller, Linda Lowes, Danielle Edwards, Christine McSherry, Dimitrios Savva, Alex Lowe, Jordan McSherry, Patti Engel
Toward patient-centered treatment goals for duchenne muscular dystrophy: insights from the "Your Voice" study. Orphanet journal of rare diseases 18 (1) (2023)
Carolyn Emily Schwartz, Katrina Borowiec, Bruce D Rapkin
Depression trajectories during the COVID-19 pandemic: a secondary analysis of the impact of cognitive-appraisal processes. Journal of patient-reported outcomes 7 (1) (2023)
Carolyn Emily Schwartz, Skyler Jackson, James Valentine, Natalie Miller, Linda Lowes, Danielle Edwards, Christine McSherry, Dimitrios Savva, Alex Lowe, Jordan McSherry, Patti Engel
Toward patient-centered treatment goals for duchenne muscular dystrophy: insights from the "Your Voice" study. Orphanet journal of rare diseases 18 (1) (2023)
Carolyn Emily Schwartz, Bruce D Rapkin
Double-blinded is not better than "mutually enlightened": implications of Lord-Besson et al. JNCI cancer spectrum 7 (2) (2023)
Carolyn Emily Schwartz, Bruce D Rapkin
Impact of comorbidities on people with and without cancer early in the COVID-19 pandemic: An observational study. Cancer medicine (2023)
Carolyn Emily Schwartz, Skyler Jackson, James Valentine, Natalie Miller, Linda Lowes, Danielle Edwards, Christine McSherry, Dimitrios Savva, Alex Lowe, Jordan McSherry, Patti Engel
Toward patient-centered treatment goals for duchenne muscular dystrophy: insights from the "Your Voice" study. Orphanet journal of rare diseases 18 (1) (2023)
Carolyn Emily Schwartz, Skyler Jackson, James Valentine, Natalie Miller, Linda Lowes, Danielle Edwards, Christine McSherry, Dimitrios Savva, Alex Lowe, Jordan McSherry, Patti Engel
Toward patient-centered treatment goals for duchenne muscular dystrophy: insights from the "Your Voice" study. Orphanet journal of rare diseases 18 (1) (2023)
Carolyn Emily Schwartz, Skyler Jackson, James Valentine, Natalie Miller, Linda Lowes, Danielle Edwards, Christine McSherry, Dimitrios Savva, Alex Lowe, Jordan McSherry, Patti Engel
Toward patient-centered treatment goals for duchenne muscular dystrophy: insights from the "Your Voice" study. Orphanet journal of rare diseases 18 (1) (2023)
Carolyn Emily Schwartz, Katrina Borowiec, Elijah Biletch, Bruce D Rapkin
Race-related differences in the economic, healthcare-access, and psychological impact of COVID-19: personal resources associated with resilience. Journal of patient-reported outcomes 6 (1) (2022)
Carolyn Emily Schwartz, Bruce D Rapkin, Katrina Borowiec, Joel A Finkelstein
Cognitive Processes during Recovery: Moving toward Personalized Spine Surgery Outcomes. Journal of personalized medicine 12 (10) (2022)
Carolyn Emily Schwartz, I-Chan Huang, Gudrun Elin Rohde, Richard L Skolasky
Listening to the elephant in the room: response-shift effects in clinical trials research. Journal of patient-reported outcomes 6 (1) (2022)
Carolyn Emily Schwartz, Roland B Stark, Katrina Borowiec, Ivana F Audhya, Katherine L Gooch
Interplay of disability, caregiver impact, and out-of-pocket expenditures in Duchenne muscular dystrophy: a cohort study. Journal of patient-reported outcomes 6 (1) (2022)
Carolyn Emily Schwartz, Elijah Biletch, Richard B B Stuart, Bruce D Rapkin
Siblings' life aspirations in the context of Duchenne muscular dystrophy: a mixed-methods case-control study. Journal of patient-reported outcomes 6 (1) (2022)
Carolyn Emily Schwartz, Elijah Biletch, Richard B B Stuart, Bruce D Rapkin
Patient life aspirations in the context of Duchenne Muscular Dystrophy: a mixed-methods case-control study. Journal of patient-reported outcomes 6 (1) (2022)
Carolyn Emily Schwartz, Bruce D Rapkin, Jhase Sniderman, Joel A Finkelstein
Appraisal and patient-reported outcomes following total hip arthroplasty: a longitudinal cohort study. Journal of patient-reported outcomes 6 (1) (2022)
Carolyn Emily Schwartz, Roland B Stark, Katrina Borowiec, Bruce D Rapkin
Drivers of caregiver impact in Duchenne muscular dystrophy: a cohort study. Journal of patient-reported outcomes 6 (1) (2022)
Carolyn Emily Schwartz, Gudrun Rohde, Elijah Biletch, Richard B B Stuart, I-Chan Huang, Joseph Lipscomb, Roland B Stark, Richard L Skolasky
If it's information, it's not "bias": a scoping review and proposed nomenclature for future response-shift research. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2021)
Carolyn Emily Schwartz, Roland B Stark, David Cella, Katrina Borowiec, Katherine L Gooch, Ivana F Audhya
Measuring Duchenne muscular dystrophy impact: development of a proxy-reported measure derived from PROMIS item banks. Orphanet journal of rare diseases 16 (1) (2021)
Carolyn Emily Schwartz, Roland B Stark, Katrina Borowiec, Karl-Johan Myren
No impact of Asian ethnicity on EORTC QLQ-C30 scores: Group differences and differential item functioning in paroxysmal nocturnal hemoglobinuria. Health and quality of life outcomes 19 (1) (2021)
Carolyn Emily Schwartz, Roland B Stark, Bruce D Rapkin
Creating idiometric short-form measures of cognitive appraisal: balancing theory and pragmatics. Journal of patient-reported outcomes 5 (1) (2021)
Carolyn Emily Schwartz, Roland B Stark, Ivana F Audhya, Katherine L Gooch
Characterizing the quality-of-life impact of Duchenne muscular dystrophy on caregivers: a case-control investigation. Journal of patient-reported outcomes 5 (1) (2021)
Carolyn Emily Schwartz, Roland B Stark, Brian D Stucky, Yuelin Li, Bruce D Rapkin
Response-shift effects in neuromyelitis optica spectrum disorder: estimating response-shift-adjusted scores using equating. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 30 (5) (2021)
Bruce D Rapkin, Carolyn Emily Schwartz
What should progress in response-shift research look like? Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 30 (12) (2021)
Carolyn Emily Schwartz, Brian D Stucky, Roland B Stark
Expanding the purview of wellness indicators: validating a new measure that includes attitudes, behaviors, and perspectives. Health psychology and behavioral medicine 9 (1) (2021)
Carolyn Emily Schwartz, Roland B Stark, Katrina Borowiec, Sandra Nolte, Karl-Johan Myren
Norm-based comparison of the quality-of-life impact of ravulizumab and eculizumab in paroxysmal nocturnal hemoglobinuria. Orphanet journal of rare diseases 16 (1) (2021)
Carolyn Emily Schwartz, Roland B Stark, Bruce D Rapkin
Capturing patient experience: does quality-of-life appraisal entail a new class of measurement? Journal of patient-reported outcomes 4 (1) (2020)
Carolyn Emily Schwartz, Brian D Stucky, Wesley Michael, Bruce D Rapkin
Does response shift impact interpretation of change even among scales developed using item response theory? Journal of patient-reported outcomes 4 (1) (2020)
Carolyn Emily Schwartz, Roland B Stark, Brian D Stucky
Response-shift effects in neuromyelitis optica spectrum disorder: a secondary analysis of clinical trial data. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 30 (5) (2020)
Carolyn Emily Schwartz, Jie Zhang, Jun Su
Longitudinal validity of the hemophilia caregiver impact measure. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 28 (7) (2019)
Carolyn Emily Schwartz, Jie Zhang, Brian Dale Stucky, Wesley Michael, Bruce David Rapkin
Is the link between socioeconomic status and resilience mediated by reserve-building activities: mediation analysis of web-based cross-sectional data from chronic medical illness patient panels. BMJ open 9 (5) (2019)
Carolyn Emily Schwartz, Roland B Stark, Brian D Stucky, Wesley Michael, Bruce D Rapkin
Positive emotions despite substantial burden: The alchemy of haemophilia caregiving. Haemophilia : the official journal of the World Federation of Hemophilia 26 (1) (2019)
Bruce D Rapkin, Carolyn Emily Schwartz
Advancing quality-of-life research by deepening our understanding of response shift: a unifying theory of appraisal. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 28 (10) (2019)