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The facilitators and barriers to improving functional activity and wellbeing in people with dementia: a qualitative study from the process evaluation of Promoting Activity, Independence and Stability in Early Dementia (PrAISED).

Claudio Di LoritoVeronika van der WardtKristian PollockLouise HoweVicky BoothPip LoganJohn GladmanTahir MasudRoshan das NairSarah GoldbergKavita VedharaRebecca O'BrienEmma AdamsAlison CowleyAlessandro BoscoJennie HancoxClare BurgonRupinder BajwaJuliette LockAnnabelle LongMaureen GodfreyMarianne DunlopRowan H Harwood
Published in: Age and ageing (2023)
Self-directed interventions may not be appropriate in the context of dementia, even in the mild stages of the condition. Dementia-specific factors affected outcomes including caregiver support, rapport with therapists, availability of supervision, motivational factors and the limitations of remote delivery. The effects of cognitive impairment, multimorbidity and frailty overwhelmed any positive impact of the intervention. Maintenance of functional ability is valued, but in the face of inevitable progression of disease, other less tangible outcomes become important, challenging how we frame 'health gain' and trial outcomes.
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