Validation of pediatric health-related quality of life instruments for primary ciliary dyskinesia (QOL-PCD).

Laura BehanMargaret W LeighSharon D DellAlexandra L QuittnerClaire HoggJane S Lucas

Published in: Pediatric pulmonology (2019)

Age-specific QOL-PCD demonstrated good internal consistency, test-retest reliability, and validity. QOL-PCD offers promising outcome measures for multicenter clinical trials, as well as monitoring symptoms, functioning, and QOL during routine care.

Keyphrases

clinical trial
palliative care
randomized controlled trial
clinical practice
quality improvement
double blind
sleep quality
depressive symptoms
open label