Experienced complaints, activity limitations and loss of motor capacities in patients with pure hereditary spastic paraplegia: a web-based survey in the Netherlands.
Bas J H Van LithHans C J W KerstensLaura A C van den BemdMaria W G Nijhuis-van der SandenVivian WeerdesteynRob J E M SmeetsKlemens FheodoroffBart P C van de WarrenburgAlexander C H GeurtsPublished in: Orphanet journal of rare diseases (2020)
Our results emphasize the large impact of spastic paraparesis on the lives of people with pure HSP and contribute to a better understanding of possible targets for rehabilitation.