The value-based healthcare approach to haemophilia: Development of outcome measures for the evaluation of care of people with haemophilia.
Paolo Angelo CortesiCarla FornariSara ContiBerardino PollioElena BoccalandroAndrea BuzziChristian CarulliAntonio CoppolaRaimondo De CristofaroMatteo Nicola Dario Di MinnoGerard DolanEnrico Ferri GrazziArianna FornariRoberta GualtierottiCedric HermansVictor Jimenez YusteTami LivnatAngelo LupiCarlo MartinoliMaria Francesca MansuetoGabriella NicolòAnnarita TagliaferriAlessandro GringeriAngelo Claudio MolinariLorenzo Giovanni MantovaniGiancarlo Castamannull nullPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2024)
The presented standard set of health outcome indicators provides the basis for harmonised longitudinal and cross-sectional monitoring and comparison. The implementation of this value-based approach would enable a more robust assessment of quality of care in haemophilia, within a framework of continuous treatment improvements with potential added value for patients. Moreover, proposed COIs and PROIs should be reviewed and updated routinely.
Keyphrases
- healthcare
- cross sectional
- quality improvement
- end stage renal disease
- palliative care
- chronic kidney disease
- ejection fraction
- newly diagnosed
- primary care
- prognostic factors
- health information
- pain management
- affordable care act
- social media
- smoking cessation
- combination therapy
- replacement therapy
- health promotion