Pediatric palliative care at home by Home Care Unit: how home nurses feel?
Amandine BertrandVéronique VeyetFlorence GoyMarie CervosMatthias SchellPublished in: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer (2021)
The analysis allowed us to identify several prerequisites for these care engagements: the availability and the proactiveness of the HCU team, communication, and planning. This study showed the pronounced personal involvement of home nurses in complex situations, with both the child and their entire family. Home nurses appear to be skilled at using the resources available to manage the exhaustion that can arise with such an engagement. Facilitating and respecting the choice to stay home of the child and their family was meaningful to them. The personal and professional enrichment were a source of motivation despite certain limitations (availability, remuneration).