Communication about prognosis and end-of-life in pediatric organ failure and transplantation.
Melissa K CousinoKurt R SchumacherJohn C MageeJoanne WolfeSunkyung YuSally J EderEmily M FredericksPublished in: Pediatric transplantation (2019)
Pediatric organ failure and transplant providers do not regularly discuss prognosis or end-of-life care topics with this patient population. Communication-focused intervention research is needed to improve honest and compassionate discussion of these topics that is aligned with both patients' and parents' needs and preferences.