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Fragility and resilience: parental and family perspectives on the impacts of extreme prematurity.

Annie JanvierClaude Julie BourqueRebecca PearceEmilie ThiviergeLaurie-Anne DuquetteMagdalena JaworskiKeith J BarringtonAnne R SynnesPaige ChurchThuy Mai Luu
Published in: Archives of disease in childhood. Fetal and neonatal edition (2023)
Parents report both positive and negative impacts after an extremely preterm birth, independent of disability. These balanced perspectives should be included in neonatal research, clinical care and provider education.
Keyphrases
  • preterm birth
  • low birth weight
  • healthcare
  • climate change
  • quality improvement
  • gestational age
  • preterm infants
  • palliative care
  • primary care
  • multiple sclerosis
  • social support
  • affordable care act