A multidisciplinary care pathway improves quality of life and reduces pain in patients with fibrous dysplasia/McCune-Albright syndrome: a multicenter prospective observational study.

Maartje E MeierMarlous Hagelstein-RotmanAnnenienke C van de VenIngrid C M Van der GeestOlav DonkerSarina E C PichardoPetra C E Hissink MullerStijn W van der MeerenDesirée M J DorleijnElizabeth M WinterMichiel A J van de SandeNatasha M Appelman-Dijkstra

Published in: Orphanet journal of rare diseases (2022)

All FD-subtypes may induce pain and reduced QoL. A multidisciplinary care pathway for FD/MAS may improve pain and QoL, mainly in new referrals without MAS comorbidities with low baseline scores. Therefore, we recommend referral of patients with all subtypes of FD/MAS to specialized academic centers.

Keyphrases

pain management
chronic pain
palliative care
quality improvement
neuropathic pain
healthcare
primary care
clinical trial
cross sectional