Advance Care Planning and Health-Related Quality of Life in Huntington Disease: Results from a Multicenter National Study.
Leonard L SokolJonathan P TroostDanny BegaBenzi M KlugerHolly G PrigersonMartha NanceSamuel FrankJoel S PerlmutterPraveen DayaluDavid CellaNoelle E CarlozziPublished in: Palliative medicine reports (2023)
STB and HRQoL PROs do not significantly affect patient engagement with ACP. Most importantly, engaging in ACP does not cause untoward effects on HRQoL or STB for this rare neurodegenerative disease where the lifetime prevalence of STB approaches 30%.