Perceived mental health in parents of children with rare congenital surgical diseases: a double ABCX model considering gender.
Johannes BoettcherHolger ZapfMareike FuerboeterRojin NazarianKonrad ReinshagenSilke Wiegand-GrefeMichael BoettcherPublished in: Orphanet journal of rare diseases (2021)
Our findings suggest that parental adaptation to a rare congenital surgical disease in their children may be improved by increased intra- and extrafamilial resources and decreased perceived family-related stress in mothers, but not fathers. Our results may help to identify gender-specific factors that may guide clinicians and future interventions.