Which outcomes should be measured in hand eczema trials? Results from patient interviews and an expert survey.

Henriette Rönsch Frederike Schiffers Robert F OfenlochE WeisshaarA S BuseA HansenS M JohnA M Giménez ArnauDavid Pesqué Tove AgnerL B NørresletLaura LomanG L E RomeijnM L A SchuttelaarA Košćec BjelajacJ MacanA BauerChristian J Apfelbacher

Published in: Journal of the European Academy of Dermatology and Venereology : JEADV (2023)

'Itch' was rated high among patients with HE and professional HE experts. While patients emphasized fissures as important, experts underlined the ability to work. This investigation allowed us to define a 'Long List' of 7 candidate outcome domains with 58 sub-domains. From this list, a panel of stakeholders will select core domains during an online Delphi survey.

Keyphrases

end stage renal disease
ejection fraction
cross sectional
newly diagnosed
prognostic factors
case report
peritoneal dialysis
type diabetes
skeletal muscle