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'No one's ever said anything about sleep': A qualitative investigation into mothers' experiences of sleep in children with epilepsy.

Georgia CookPaul GringrasHarriet HiscockDeb K PalLuci Wiggs
Published in: Health expectations : an international journal of public participation in health care and health policy (2023)
This individual study was conducted under the umbrella of the CASTLE research programme (see https://castlestudy.org.uk/). Parents who have lived experience of parenting a child with epilepsy were co-applicants for the programme and were involved in the original conception, aims, design and funding application for the research programme (including the project reported in this paper) and advised on project design. Mothers of CWE who have lived experience of managing sleep and sleep problems in their child were participants who shared their experiences through the interviews, which formed the data of the current study.
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