Multicenter Qualitative Study Exploring the Patient Experience of Digital Ulcers in Systemic Sclerosis.
Michael HughesJohn D PaulingJennifer JonesChristopher P DentonRobyn T DomsicTracy M FrechAriane L HerrickZsuzsanna H McMahanMarco Matucci-CerinicLorraine McKenzieLesley Ann SaketkooRachael Gooberman-HillAndrew MoorePublished in: Arthritis care & research (2020)
The patient experience of SSc-DU is multifaceted and comprises a complex interplay of experiences associated with significant pain and morbidity. Patient experiences of SSc-DU are not captured using existing SSc-DU outcomes. Our findings will inform the development of a novel PRO instrument to assess the severity and impact of SSc-DU for use in future SSc-DU clinical trials.