Dutch patients, caregivers and healthcare professionals generate first nationwide research agenda for juvenile idiopathic arthritis.

Anouk VerwoerdWineke ArmbrustKatherine CowanLotte van den BergJoke de BoerSanne BookelmanMarjan BritstraJeannette CapponMaria CertanChristine DeddingKarin van den HaspelPetra Hissink MullerKarin JongsmaOtto LelieveldJorg van LoosdregtWendy OlsderJohanna RochaEllen SchatorjéNatasja SchoutenJoost F SwartSebastiaan VastertMargot WalterCasper G Schoemaker

Published in: Pediatric rheumatology online journal (2021)

Through this study, the top 10 research priorities for JIA of patients, their caregivers and clinicians were identified to inform researchers and research funders of the research topics that matter most to them. The top priority involves the treatment and mechanisms behind persisting pain and fatigue when the disease is in remission.

Keyphrases

juvenile idiopathic arthritis
end stage renal disease
palliative care
ejection fraction
newly diagnosed
peritoneal dialysis
prognostic factors
rheumatoid arthritis
disease activity
depressive symptoms
spinal cord injury
spinal cord
physical activity
ulcerative colitis
combination therapy
global health