COVID-19 pandemic experiences of parents caring for children with oesophageal atresia/tracheo-oesophageal fistula.
Alexandra StewartChristina H SmithSimon EatonPaolo De CoppiJo WrayPublished in: BMJ paediatrics open (2021)
Parents' experiences of caring for a child with OA/TOF during the pandemic were varied. Rapid adoption of telehealth has demonstrated the enormous potential of remote healthcare delivery but requires refinement to meet the needs of the individual. Future pandemic planning should aim to retain community healthcare services to avoid escalation of care to an emergency, manage chronic and developmental concerns, and support parental well-being. Accurate and consistent disease-specific information is highly valued by parents. Third sector organisations are ideally positioned to support this.
Keyphrases
- healthcare
- mental health
- sars cov
- coronavirus disease
- health information
- mass spectrometry
- young adults
- ms ms
- emergency department
- knee osteoarthritis
- palliative care
- current status
- affordable care act
- risk assessment
- human health
- clinical trial
- randomized controlled trial
- health insurance
- quality improvement
- chronic pain
- drug induced