Login / Signup

Development and Pilot Validation of the DuMAND Checklist to Screen for Duchenne Muscular Dystrophy-Associated Neurobehavioral Difficulties (DuMAND).

Sam GeuensNathalie GoemansJurgen LemiereNathalie DoorenweerdLiesbeth De Waele
Published in: Journal of neuromuscular diseases (2024)
By introducing the DuMAND concept, this study seeks to inspire a consensus approach for screening, assessing, and managing neurobehavioral issues in DMD. Incorporating screening, using the DuMAND Checklist, in addition to medical follow-up will facilitate early intervention, addressing a critical gap in identification of neurobehavioral disorders in DMD. Future research is needed to further evaluate psychometric properties of the DuMAND Checklist and investigate the natural course of DuMAND.
Keyphrases
  • duchenne muscular dystrophy
  • psychometric properties
  • muscular dystrophy
  • randomized controlled trial
  • healthcare
  • high throughput
  • study protocol
  • current status
  • bioinformatics analysis