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Determining the informational needs of family caregivers of people with intellectual disability who require palliative care: A qualitative study.

Laurie McKibbenKevin BrazilDorry McLaughlinPeter Hudson
Published in: Palliative & supportive care (2021)
New insights into the specific informational needs of this family caregiving population. A co-designed logic model presents these needs and how they may be addressed. Central co-ordinators have been advocated for these caregivers. This model could have international applicability for similar family carers, supporting people with other disabilities or cognitive impairment, and should be further explored.
Keyphrases
  • intellectual disability
  • palliative care
  • cognitive impairment
  • autism spectrum disorder
  • advanced cancer