Determining the informational needs of family caregivers of people with intellectual disability who require palliative care: A qualitative study.
Laurie McKibbenKevin BrazilDorry McLaughlinPeter HudsonPublished in: Palliative & supportive care (2021)
New insights into the specific informational needs of this family caregiving population. A co-designed logic model presents these needs and how they may be addressed. Central co-ordinators have been advocated for these caregivers. This model could have international applicability for similar family carers, supporting people with other disabilities or cognitive impairment, and should be further explored.